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Lessons from three generations of heart disease

Mallorie von Tillow was 14 when she thought she heard her mother Jeanie cry out from her bedroom. Finding her slumped on the bed unconscious, the teenager yelled for her father to call 911 and started giving her mother CPR. Along with a few others that day, including emergency dispatcher, paramedics, doctors and hospital teams, she helped save her mother's life.

Jeanie von Tillow still puzzles over how her daughter knew she was in trouble.

The cardiac arrest came without warning. "There was no time for me to cry out."

Perhaps Mallorie, who still maintains she heard something, simply sensed her mother needed her.

Whatever communicated Jeanie von Tillow's distress that February day in 2001, the right person got the message. Only two weeks before, Mallorie had completed CPR training in her high school health class.

Mother and daughter, both of Santa Rosa, often tell their story as part of the American Heart Association's annual "Go Red for Women" campaign to remind women to be heart-healthy. As part of this year's local events, there will be a 5K "Run with Heart" race Feb. 23 at Riverfront Park in Healdsburg.

The von Tillows will not participate, as there is a new chapter in the family heart story. Mallorie's baby daughter, Alexandria Kahealani Cummings, had open-heart surgery in November due to the same life-threatening heart defect, tetralogy of fallot, as Alexandria's grandmother, Jeanie.

To back up, Jeanie von Tillow was born in 1961 with what some call a hole in her heart, a congenital heart defect that changes the flow of blood to the heart muscle.

"I was a blue baby," she said, referring to the skin's blue tinge when blood is low in oxygen.

"There were no tests for this. No one expected this. They didn't think I was going to live and actually baptized me in the hospital," said von Tillow, now 52.


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